= ME-section full screen
= ME-section in frame
Experience
Definitions
Books
Sites
Problems
Medical
info+
NICE-ME || M.E.
in Amsterdam +
Stukjes
(mainly Dutch)
Welcome to my ME pages!
M.E. is the name of a disease I have now since January 1, 1979.
There is some
recent - 2003 - medical
information about M.E. that is quite interesting.
Unlike many persons with M.E. (a.k.a. CFS, which is a name
I don't like much) my disease is "officially and bureaucratically recognized
and admitted", but even so I have gottem no help whatsoever in
Amsterdam, where I have to try to survive with this disease for 26 years now.
The reason I have gotten no help whatsoever from the Amsterdam municipal
authorities and their bureaucacy is very probably because I dared to
criticize those who are legally bound to help me, as explained in
ME in Amsterdam. And authorities
and bureaucrats don't like that.
The main reason that my disease is
"officially and bureaucratically recognized and admitted" is that I am ill for so long,
because I am
qualified academically as a psychologist, and because I
fell ill while in the beginning of my student-years, and never had any
interest to falsely claim I am ill. But as I said: Being a "bureaucratically
recognized and admitted" invalid makes no difference to me, and I must
spend 16 hours a day in bed in pain without any help, because this pleases the
mayor and aldermen and corrupt bureaucracy of the City of Amsterdam very much,
and all help I could get must be approved by these worthies.
The difference since September 2005, after having been ill since January 1,
1979 (no misprint, dear reader: 26 years!), is that now I have ME/CFS
according to the local specialists
at the
CFSCentrumAmsterdam.
Recently - since the summer of 2006 - this has made some positive difference
to me, that has not cured me but is quite important since I do consistently
get no help whatsoever in Amsterdam from the Amsterdam municipal authorities since 29
years. I have namely offended these worthies, it seems.
For more, see ME in Amsterdam,
though apart from the introduction you need to understand Dutch. And yes: It
is a very bitter and very true story.
And there are now, since August 2007, the British
National Health Guidelines for the Treatment of ME/CFS.
I wish you pleasurable and instructive reading and
computing!