M.E. in Amsterdam
There is an ENORMOUS
amount of information about ME on the internet - far more than anyone
profitably or sensibly read through.
If you want recent medical
that is up to date, sensible and by medical specialists, try Medical
info and especially the 2003-report
for the Canadian government (PDF-file).
Or else try some of the
mentioned below - most of them have very many interesting and/or useful
The present December 2009 version is a rather
different listing than was on my site until December 2009, for I have
since learned about the medical
fraudulence as regards ME that has been perpetrated by the US CDC, the
English quacks Wessely and Sharpe, and the dangerous Dutch quacks
Bleyenberg and Van der Meer - for which see Research Background
For me, who was ill for ten years - 1979 to 1989 -
without even knowing the disease I had and also, apart from the woman I
with the first 5 years of our shared disease, not knowing of anyone
afflicted, this is a huge improvement.
Others who have not been
ill so long, and who take
both their disease and rational argument serious, may well feel that
far too much information about ME.
Through the last three years I have checked through
quite a few sites about ME. Here are some of the best personal sites I
found followed by a very good commercial one. First the personal or
Most of these sites contains
a lot of information and very
many links to other sites.
The advantage of most of
above sites (or parts of sites) are:
(1) they are informed and for the best part rational and scientific
(2) The first three are by people who know from their own experience
what it is to have ME
(3) they are extensive and
(4) they are maintained or informed by academics.
The last point is relevant
that there still are academic health-professionals - especially in
Great Britain - who claim ME is psychiatric, psycho-somatic, hysteric,
neurasthenic etc. and have little other authority except their own
health and academic diplomas. (Not everyone who believes he or she has
M.E. indeed has it, but this is no reason to maintain that those who do
have it are mentally disturbed - unless, of course, you are a
fraudulent psychiatric or psychological quack out for easy money, or a
sadist bent on destroying lives of ill people who cannot or dare not
Here are some comments on
InvestInMe: This is
a fine English site with much excellent material, including
well-formatted versions of Professor Malcolm Hooper's fine writings
belongs to the above and consists of a number of forums for and by
ME-patients, including quite a few who have it a long time.
This is quite helpful and many of these patients are well informed,
sensible and write well. It also gives a lot of information about what
various therapies and medicines did to various people.
Phoenix Rising is by an
American with ME, Cort Johnson, and is well done with lots
of information and help, also about the recently discovered XMRV-virus,
for which there is strong evidence that it is somehow involved with ME.
For the XMR-virus see: XMRV Information
site contains many contributions
by Dr. Ellen Goudsmit Ph.D., an English psychologist with ME
and with a very great amount of scientific knowledge about M.E.
It seems to me that at
the combination of the Phoenix
Forums and the InvestInMe
are the currently the best and most informative
sites about ME: On the first you get the views and experiences of
people with ME, in some cases for decades; on the second you'll find
much well-edited information relating to ME written by experts.
Forums is a forum or set of forums that is set up by patients
with ME many of whom are quite articulate, informed and highly
educated, that also combines with the Phoenix Rising
site that contains a lot of useful scientific information about ME. The
Forums and the Phoenix
site are located in the US.
InvestInMe is a
large well-formatted site by English experts on ME, who are not of the
harmful and dangerous English Wessely-school, and contains very much
information about ME and its problems.
Note on the following
I very probably only partially
agree with any of the medical doctors named and linked to, but the
first has ME herself since many years; the second is my current medical
specialist; and the third has a theory and approach that is like mine
was for some 20 years.
Andersen is a
Danish M.D. with M.E. Yes, it can happen to real medical doctors as
well. Her site has a lot of medical information around M.E.
It is no longer updated since the beginning of 2009.
is where I have been accepted as a patient in 2005. This is not as
extensive or sophisticated a site as the others named and linked in the
present file, but it has some information about carnitine and ME, also
It is run by Dutch
doctors, and seems the best place to go to provided you live in Holland
and your G.P. believes you might have ME/CFS.
Note here that one basic
problem Dutchmen with ME have is that the egregious medical and
scientific dangerous professors frauds Bleyenberg and Van der Meer have
done their utmost since 25 years to slander patients with ME and force
them into psychotherapy - and meanwhile to prevent them from getting
any other medical help patients are entitled to.
This is as honest and
as denying AIDS is a disease and recommending its cure with beetroots
and cucumbers; as decent and scientific as withholding people with
cancer any medical help while insisting they must go for treatment to
witchdoctors, psychiatrist or warranted medical frauds.
DoctorMyhill.com: This is the
site of Sarah Myhill, an English G.P. with an extensive site, who
claims to have treated 4000 patients with ME, and who has a theory
about ME which is much like my own of 1987, and has an combined
orthomolecular and medical approach that looks helpful.
Please note also that I do
recommend that you follow any medical therapy, especially not if you
have little money and are ill, and that I strongly disrecommend that
you follow any psychotherapy in connection with ME/CFS, if you have ME
for more than two years.
My reason for my first
recommendation is that the probability it will help patients with ME is
small, as long as there is no good causal explanation of ME, while it
is a certainty the medical people treating you will profit.
So here you have
consider your medical insurance.
My reason for my second
recommendation can be taken from the text that follows for which also
see my note (*) as regards my own
qualifications to disqualify my brethren psychologists, most of whom I
regard as frauds, even if they do not make their money fraudulently by
way of ME, and especially if they are Dutch, like I am, unfortunately.
Both of the following are,
my opinion, excellent - but both will tend to incline especially
patients with ME to depression, for it turns out that these people have
been frauded on purpose for 30 years now by medical frauds working for
the American CDC, and/or active in psychiatry or psychology in England
and Holland, where patients with ME are abused, maltreated and
defrauded so as to provide psychiatric/psychological "therapists"
fraudulent incomes. (*)
Hooper is a retired professor of medical chemistry who wrote
several very good reports on ME, that also deservedly attack the
English medical frauds Wessely and Sharpe.
for some very deserved
attacks on the English medical frauds Wessely and Sharpe.
Hillary Johnson is an
American investigative journalist, who writes for Rolling Stone and the
New York Times and who has brought to light the horrible
fraudulence of the US CDC as regards ME
for an excellent
speech of May 2009 on an English ME-conference, and her site for the
medical mega-fraudulence as regards ME perpetrated by the crimimal CDC,
as proved by her in The Osler.
Institute for Neuro-Immune Disease, a nonprofit in Reno, Nev.,
founded recently by the parents of a young woman who has the syndrome.
Here the evidence for the role of XMRV
in ME was found in 2009.
York Times article nov 2009: This is a good 2-part article in
the NYT, that is a follow up on another article in the NYT from October
a virus the cause of Fatigue Syndrome?
recommendation, especially if you are not
qualified scientifically, to disbelieve and reject
anything that is endorsed as regards ME by the American CDC, by the
English medical frauds Wessely and Sharpe and their associates, and by
the Dutch medical frauds Bleyenberg and Van der Meer.
All of these are
false, phony medical quacks, who defraud their patients, abuse and
falsify real science, and are only out for medical subsidies for
themselves, and healthcare-insurance money for their fraudulent
psychotherapies, if they are not sadists to start with.
My reasons for this strong
recommendation are in the above links of Hooper
that I myself only came to know in October 2009.
and don't believe everything you read. Also, one very good thing about
the internet is that you can do a search on topics. Thus you may find
several perspectives on the same topic, which is usually helpful. This
applies both in case you consider a medical treatment or consider
And if you only recently
came to believe you have ME/CFS:
- Try to find a good GP who can exclude or identify other
possible causes for your ailments. This is important, for while
you can live a long time with ME/CFS other diseases with similar
symptoms may kill you fast if they are not properly diagnosed and
treated. (So do not believe your persistent fatigue "must" be
M.E. without going to at least one qualified M.D. If it is something
else than M.E. this may be dangerous.)
- Try to inform yourself as good as you can. There is
currently an enormous amount of information about ME/CFS on the
internet. You can't read all, but you can currently find out about most
approaches to and opinions about ME/CFS.
- It also helps to
cultivate a somewhat
skeptical scientific approach, and it helps
if you know some science.
so happens is that I have a top-degree (M.A.) in the (supposed) science
of psychology, which I studied when having M.E. (apart from the first
three months), and it so happens that my M.A. in it - a so-called free
M.A., finished with the best possible marks - is mostly in
physics, logic and mathematics, because I quickly learned that, by my
standards, much of psychology is not scientific at all, but
quasi-science, and that I had started it on the false premiss that it
might help me understand human reasoning, which it didn't.
So... there indeed is
truly excellent psychology, but much of it is in William James's
"The Principles of Psychology", under the link, on my site, the
knowledge of which indeed caused my starting the study of psychology,
in the hope of more of the same quality, only to find out very quickly
that much of modern psychology is fraudulent baloney, by my
lights, which happen to be much informed by extensive knowledge
of real science and philosophy of science. (For which
see my Ten good modern
philosophy texts and my site,
especially the section Philosophy.)
My recommendation as
regards psychology and psychologists, as a patient with M.E. since 32
years and as a psychologist is this: Beware,
avoid, disbelieve - most psychologists are little better
than frauds; very few know any real science; and clinical
psychology is mostly a fraudulent mumbo-jumbo to enrich psychological
and/or psychiatric conmen and -women, and all this wholly apart from ME.
Also, please note that I
reached my own position on the fraudulence of most modern
psychology-as-a-science around 1980, long before knowing about ME,
and long before reaching my present conclusions, but simply on the
strength of the awful "education" in psychology, and the very low intellectual
quality of the professors teaching it, at the University of Amsterdam.
(The link is to a series of essays published in the late eighties, in
the course of a year, for psychologists and students of psychology at
that university, in which I described my professors as "whores of reason". None of the
frauds dared to contest with me in public.)
And yes, there still
is real psychological science - but most of it is neurology, brain
science, or mathematical statistics, all of which are real sciences
that are not open to the vast majority of graduates in
psychology, for they lack the required knowledge of science or
mathematics, and usually have no real scientific or mathematical
interests or talents whatsoever.
Here is ME -ocumentation
Here are ME - Resources.