ME - Books
I first learned about ME in 1989, when I had it
for 10 years. Before that I had not heard of it, which is not odd,
since there was no real internet, and since I have not studied medicine
(but philosophy and psychology).
What's more disconcerting, is that the
medical people who had investigated me and my common law wife, who also
fell ill in january 1979, with the same disease, also had not heard
from it, apparently, even though it turned out in 1989 that I had very
clearly listed the typical symptoms of ME in letters to medical doctors
In 1989 and 1990 I have read several books
about ME. Some were by medical people; some were by patients. Not one
of them was really good, though the reasons why differed, and some of
my reasons are probably personal: I am myself rather in favor of real
science, and know a considerable amount about it.
The problem I have with views of patients
with ME is that many patients with ME have less scientific knowledge
than I have, and similar bad experiences with medical doctors as I have
had. The result is that they tend to be far more dismissive of science
and ordinary medicine than I am.
The problem I have with books by medical doctors about ME is
that those I have read were addressed to patients with less knowledge
of science and medicine than I have.
In earlier versions of my site I have listed
some books, but in the present version I have avoided them, because
those I have read I was not much impressed by, and they are now out of
date, and because if you have access to the internet it is more helpful
to find out what is currently on the net. Here is a link to a file
Sites concerned with ME that I
found helpful, and where you may find many more links.
Postscript from Sep 10, 2016: This is as it was in 2005, except that I redid the font and the background color.
I have read more books about ME (often called "CFS") but none was
enlightening. Also, for those who know a little about medicine, I think
the Canadian ME-Overview or the shorter summary CG Overview are probably still the best.
(There also is a later one, but they restyled Post-Extertional Malaise (PEM) to something else, which I think was a mistake.)