Nederlog

 

 October 12, 2010

 

ME + me:  Update ME-Resources + some good news


Indeed I continue being not well, for which reason I still have not yet written more on the DSM-5TM  I also wanted to write a bit more about psychiatry and about Cargo Cult Science and pseudoscience, but these things also have to be queued awaiting somewhat better times.

I intend to write more about Warren Sturgis McCulloch whose fine, courageous, honest, very knowledgeable assessment of psychiatry in "The Past of a Delusion" (pdf, 2.8 MB) I wrote about the last time, which is a MUST READ for everyone with ME (with any rational scientific interest), but not today, in which I have just two simple points.

1. Update ME-Resources
2. Creation of Center of Excellence for CFS considered at NIH

1. Update ME-Resources

First, I have an update ME-Resources from which I repeat Lucian's dialogue, since I like it and it applies to ME + me (more than not):


PHILOSOPHY
(Godess of): But what's your job? There's no harm in asking that.
LUCIAN: I'm an anti-cheatist, an anti-quackist, an anti-liarist, and an anti-inflated-egoist. I'm anti all the revolting types like that - and there are plenty of them, as you know.
PHILOSOPHY [smiling]: Well, well! You're quite an anti-body, aren't you?
LUCIAN: I certainly am. You can see why I've got myself aso much disliked, and why I'm in such a dangerous situation. Not that I'm not an expert pro-body too. I'm a pro-truthist, a pro-beautician, a pro-sinceritist, and a pro-everything that's pro-worthy. But I don't find much scope for exercisting my talents in that direction, whereas thousands of people are always queuing up for the anti-treatment. In fact I'm so out of practice as a probody, that I dare say I have lost the knack of it by now - but I'm a real expert at the other part of my profession.
PHILOSOPHY [seriously]: That's bad. They're opposite sides of a coin, as it were. So don't specialize in one at the expense of the other. They should merely be different aspects of the same fundamental attitude.
LUCIAN: Well, you know best, Philosophy. But I'm so constituted that I can't help hating bad types and liking good ones.
   (From: Fishing for phonies, Turner translation, Penguin Classics, p. 177-8)

The version of ME-Resources is mostly that of The past year of ME + me - some that I learned with the addition of this

For a true and still valid description of psychiatry by the former professor of psychiatry, later professor of neurophysiology and one of the founding fathers of cybernetics and neural networks see McCulloch vs. Wessely and for a true and still valid description see the fundamental description of what pseudoscience is by the worldfamous physicist Richard Feynman see: Feynman vs Wessely.

Version: 1.0 - October 12, 2010.

2. Creation of Center of Excellence for CFS considered at NIH

Second, also in the context of my repeated call by the physicist John Archibald Wheeler's, seeing this is VERY much needed in the psychiatric, psychotherapeutic and psychological pseudo-sciences (and elsewhere too):

Drive The Pseudos Out Of The Workshop Of Science!

and with my sincere hope this may be starting to happen in the US, here is a brief bit from a larger report Cort Johnson wrote on Phoenix-Rising with the part that interests me made red by me

Asst Secretary of Health Koh - Be sure to be up for the start because Dr. Koh our liaison to Dr. Collins (the head of the NIH). will speak. He’s not going to speak much but length, as they say, is overrated. Known as someone who ‘produces’, Dr. Koh was Assistant Secretary of Health for a year before he showed up at a CFSAC meeting but when he did - last session http://www.hhs.gov/advcomcfs/meeting...00510min.html- he promised results. After noting that that he had ‘lost count’ of the number of times Dr. Wanda Jones had briefed him on issues of importance to CFS he stated that he and Dr. Jones had a ‘direct discussion’ with Dr. Collins about the creating a Center of Excellence for CFS, something that, in his opinion, is ‘so, so reasonable’. It’ll be interesting to hear if Dr. Koh has something concrete to announce.

This seems quite good new, "unthinkable" - as the somewhat paradoxical term is - until very recently: ME + me :  Good ME-news: Dr. Alter et.al. paper + Dr. Mikovits video - namely that the head of the NIH is discussing the Creation of Center of Excellence for CFS.

I do very much hope this comes to rational fruition, for patients with ME and in the interest of real medical science, notably what is called multi-systemic diseases and to drive the pseudos out of science.


P.S.  There's more I could have written about, and more about McCulloch I would have written today with a bit more health, but such is life, with ME. There are also some more updates of the site, but this is for later and in Dutch.

P.P.S. It may be I have to stop Nederlog for a while. The reason is that I am physically not well at all. I don't know yet, but if there is no Nederlog, now you know the reason.

 

As to ME/CFS (that I prefer to call ME):

1. Anthony Komaroff

Ten discoveries about the biology of CFS (pdf)

2. Malcolm Hooper THE MENTAL HEALTH MOVEMENT:  
PERSECUTION OF PATIENTS?
3. Hillary Johnson

The Why

4. Consensus (many M.D.s) Canadian Consensus Government Report on ME (pdf)
5. Eleanor Stein

Clinical Guidelines for Psychiatrists (pdf)

6. William Clifford The Ethics of Belief
7. Paul Lutus

Is Psychology a Science?

8. Malcolm Hooper Magical Medicine (pdf)

Short descriptions:

1. Ten reasons why ME/CFS is a real disease by a professor of medicine of Harvard.
2. Long essay by a professor emeritus of medical chemistry about maltreatment of ME.
3. Explanation of what's happening around ME by an investigative journalist.
4. Report to Canadian Government on ME, by many medical experts.
5. Advice to psychiatrist by a psychiatrist who understands ME is an organic disease
6. English mathematical genius on one's responsibilities in the matter of one's beliefs:
   "it is wrong always, everywhere, and for anyone, to believe anything upon
     insufficient evidence
".
7. A space- and computer-scientist takes a look at psychology.
8. Malcolm Hooper puts things together status 2010.
 


    "Ah me! alas, pain, pain ever, forever!

No change, no pause, no hope! Yet I endure.
I ask the Earth, have not the mountains felt?
I ask yon Heaven, the all-beholding Sun,
Has it not seen? The Sea, in storm or calm,
Heaven's ever-changing Shadow, spread below,
Have its deaf waves not heard my agony?
Ah me! alas, pain, pain ever, forever!
"
     - (Shelley, "Prometheus Unbound") 


    "It was from this time that I developed my way of judging the Chinese by dividing them into two kinds: one humane and one not. "
     - (Jung Chang)

 


See also: ME -Documentation and ME - Resources


P.P.S. ME - Resources needs is a Work In Progress that hasn't progressed today.


(*)

Maarten Maartensz

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